ISPIA Distinguished Lecture: Human Genomic Data, Privacy and Oversight

Over the past ten years, the cost of sequencing a human genome has dropped from over $40 million (USD) to under $5000. This dramatic drop in cost has lead to a dramatic increase in the use of whole exome and whole genome sequencing in research and clinical care, as well as the development of a direct-to-consumer market for large-scale genetic information. Historically, the ethos of human genomics has been one of open sharing, which has been critical to progress in the field: one genome tells you nothing, meaning can only be found in the analysis of many genomes. This openness, however, holds new risks for the individuals from whom the data are derived, as it has recently become clear that even anonymized genomic data can be re-identified. Both human subjects research oversight and the structure of genomic research itself must change to take account of these new risks to privacy and confidentiality. Lectures are free – General public are welcome to attend. Refreshments will be provided following the lecture. Tickets: No RSVP Required More info: http://www.ispia.ucalgary.ca/node/148

Location:

ICT 516

Speaker:

Dr. Debra Mathews

More information at http://www.ucalgary.ca/events/calendar/ispia-distinguished-lecture-human-genomic-data-privacy-and-oversight